Sincere apologies for my silence  typing has become very very hard and I now only have 2. Fingers on my right hand that work. Each night I hope that they are still functioning in the morning they are my link to a world I am increasingly cut off from . I have my stairlift and recently my eyegaze computer but  god is it hard to use.  You have to use your eyes to focus on a letter, hole it down then move onto the next one and a apart from being slow my eyes seem to flicker randomly across the keyboard  refusing to go where I want them to. I can’t imagine ever getting to rely on this for all my social interaction.

i ve also turned into a box set junkie spending hours in front of the tv something I never did in my previous healthy life.i I watched 6 seasons of The Sopranos in  a matter of weeks and felt bereft when it ended particularly since the actor died in real life in June. Mind you he went suddenly after a good night out which seems a much better way to go than slowly being paralysed the way I am. Now I m motoring through Lost which I m not sure i understand at all but it takes my mind off things as we head into the cold, dark evenings. I never imagined I d see another Christmas, and maybe I won’t, but I m not quite ready to go yet and anyway, my book is soon to be Re released by a real publishing company. Watch this space.

2 thoughts on “Changes

  1. We have not heard from in a while. I hope you are Ok – that is in as much as can be. Please continue with your ‘blogs’ as it gives us so much hope and courage. My speech is almost gone now but my hands and fingers are working.
    Just got a ‘cough assist’ breathing machine which has helped give me a full nights sleep for a change.
    Keep going and don’t give up.
    Love Babs

  2. Hi there thanks for encouraging comments inspired me to write an entry this morning, not that it is very uplifting. Life is a daily. Struggle with my failing body now.